CFS/ME Research & News

 

'Managing my ME.' ME Association publish results of huge survey report

British News

 

Friday 28th May 2010

 

Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for them and what don't are available here for downloading.

 

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Subset-directed antiviral treatment of 142 herpesvirus patients with chronic fatigue syndrome

American News

 

Monday 24th May 2010

 

We hypothesized that chronic fatigue syndrome (CFS) may be caused by single or multiple Epstein–Barr virus (EBV), cytomegalovirus (HCMV), or human herpesvirus 6 (HHV6) infection.

 

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Catch Dr. Myhill's Live Online TV Chat, Thurs May 20

British News

 

Monday 17th May 2010

 

Just to let you know – this Thursday May 20th at 8 pm London time, Sky Channel 200, yours truly will be performing.

 

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Poor quality of life for kids with ME

British News

 

Monday 17th May 2010

 

Research by Dundee scientists finds majority of youngsters with condition are not well enough to attend school full-time.

 

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Young carers 'bullied at school'

British News

 

Monday 17th May 2010

 

Two-thirds of young carers are bullied at school, according to a new study.

 

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Helping people with ME

British News

 

Sunday 16th May 2010

 

The founder of a support group for ME sufferers hopes an awareness week, which ends today, will help people develop a greater understanding of the condition.

 

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Hainault mum rebuilds life as she battles M.E.

British News

 

Saturday 15th May 2010

 

TWO letters changed Margaret Sansom's life beyond recognition, forcing her to leave her job, quit her hobbies and totally change her way of life.

 

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Response to Comments on "Detection of an Infectious Retrovirus, XMRV, in Blood Cells of Patients with Chronic Fatigue Syndrome"

American News

 

Friday 14th May 2010

 

We reported the detection of the human gammaretrovirus XMRV in 67% of 101 patients with chronic fatigue syndrome (CFS) and in 3.7% of 218 healthy controls, but we did not claim that XMRV causes CFS. Here, we explain why the criticisms of Sudlow et al., Lloyd et al., and van der Meer et al. regarding the selection of patients and controls in our study are unwarranted.

 

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Living with chronic fatigue syndrome

British News

 

Thursday 13th May 2010

 

I developed ME in 1997, just after my 11th birthday. At the time I had no idea how life-shattering it would turn out to be. I had previously enjoyed going out with friends, dancing, walking my dog, but suddenly found myself too weak to get out of bed in the mornings, and too sick to eat.

 

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UK ME expert to speak in Galway

Irish News

 

Thursday 13th May 2010

 

Dr William Weir will speak about ME/chronic fatigue syndrome on Sunday May 30 at 2pm at the Courtyard Mariott Hotel, Headford Road, as part of ME Awareness Month.

 

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Chronic-illness group voices call for national diagnostic clinic
Canadian News

 

Wednesday 12th May 2010

 

A national diagnostic and treatment centre is desperately needed to help the more than one million Canadians suffering from chronic fatigue syndrome, fibromyalgia and multiple chemical sensitivities, according to a support group for those with the conditions.

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Chronic fatigue syndrome is a lonely disease

American News

 

Tuesday 11th May 2010

 

Like many other people who have the disease, Perry Doner wishes there was no need to mark Chronic Fatigue Awareness Day.

 

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Call to Ban Blood Donation by Chronic Fatigue Syndrome Patients in Europe

American News

 

Saturday 8th May 2010

 

With Canada, Australia, Britain and New Zealand already barring people with chronic fatigue syndrome (CFS or ME/CFS) from giving blood, an organization is now calling for a similar ban all across Europe.

 

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Letter from Vincent Cable MP to Richmond and Kingston ME Group

British News

 

Friday 7th May 2010

 

One of our committee members wrote to Vincent Cable MP in 2009 about the recent NICE Guidelines on ME/CFS

 

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