Name Change News - And Plans for the Road Ahead
USA News
Monday 30th October 2007
Virtually everyone knows that ‘chronic fatigue syndrome’ is a horrible name that harms patients by making light of their suffering. It is a name that has inflicted unimaginable harm and it has lasted too long.
Financing a judicial review of the NICE guideline on ME/CFS
British News
Friday 26th October 2007
The ME Association recently received an email from the One Click Group asking for a contribution towards the costs of bringing a legal action for judicial review of the NICE Guideline on CFS/ME. The Association has been asked by members for its view on whether such a contribution should be made.
Write to your MP
British News
Thursday 25th October 2007
Members of M.E. charities are being asked to help raise the profile of M.E. in Westminster by writing to their constituency MP, asking him or her to apply for a Commons adjournment debate on M.E.
Major ME broadcasting event on BBC Radio
British News
Thursday 25th October 2007
ME will receive special treatment on BBC Radio 4 at the beginning of November. The "You and Yours" programme will be running a seven-part series, beginning on November 2
ME/CFS occupational health guidance under review
British News
Saturday 20th October 2007
A total of 25 ME charities and groups have now signed up to a statement repudiating the NHS Pus occupational health guidance for ME/CFS as "insulting to many people with this illness who have fought tooth and nail to keep their jobs and tried everything to get better".
Update on Antiviral Medication and Comprehensive CFIDS Management
USA News
Tuesday 16th October 2007
Antiviral medications have generated considerable scientific attention in the primary and adjunctive treatment of CFIDS and FMS - in the subset of the population with a viral component as part of individual etiology.
30 years in the making, chronic fatigue drug goes to FDA
USA News
Thursday 11th October 2007
Hemispherx Biopharma Inc. filed a new drug application with the Food and Drug Administration Thursday seeking to market its experimental therapeutic Ampligen as a treatment for chronic fatigue syndrome.
Lyme Disease Presenting as Chronic Fatigue Syndrome
USA News
Wednesday 10th October 2007
Objective: Chronic Fatigue Syndrome (CFS) by definition represents a diagnosis of exclusion. Late stage or "Chronic Lyme" infection with or without "co-infections" is a difficult diagnosis to establish. The symptom complex of both conditions can be very similar. This case study represents an attempt to support serious consideration for a subpopulation of patients otherwise diagnosed with "CFS," as actually representing chronic Lyme disease.
Unique Sugar Now Featured on Andrew Weil, MD
USA News
Monday 8th October 2007
In addition to its restorative properties for heart health Dr. Weil points out that "ribose may ease the pain and fatigue of patients with fibromyalgia and chronic fatigue syndrome." Referencing a study published last year in the Journal of Alternative and Complementary Medicine (Vol. 12: No. 9, 2006), Dr. Weil says that "patients who took five grams of ribose three times a day for an average of 28 days reported less muscle soreness and stiffness, better ability to overcome fatigue, and simply feeling better."
New ME/CFS group in Northamptonshire
British News
Friday 5th October 2007
A new ME/CFS group is to be set up in Crick, Northamptonshire – at the home of Mrs Patricia Lake, who is the wife of the vicar the Rev David Lake.
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