CFS/ME Research & News

 

Lyme Disease & Chronic Fatigue Syndrome - A Patient-Researcher's Perspective

British News

 

Monday 30th July 2007

 

A UK-based patient/researcher offers information on borreliosis (Lyme disease) - and a perspective on the difficulty of its diagnosis in individuals currently with a diagnosis of Chronic Fatigue Syndrome.

 

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Gulf War illness still incurable

USA News

 

Friday 27th July 2007

 

Many U.S. Gulf War veterans continue to suffer from mysterious illnesses more than 16 years after the conflict ended, several witnesses testified this week before a congressional committee.

 

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New DWP medical guidance for Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME)

British News

 

Tuesday 24th July 2007

 

The new DWP guidance is now published on the website of Department for Work and Pensions (DWP)

 

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Comment from Angela Kennedy on proposal for Parliamentary Debate

British News

 

Friday 20th July 2007

 

At present I cannot think of one MP with enough grasp of the situation for ME/CFS sufferers (the damaging effects of the psychiatric paradigm, its flawed evidence and irrationality as a belief system, the systematic attack on patients as deviant not ill, the biomedical evidence demonstrating physiological abnormality and now ongoing infections being ignored just for starters) to mount a cogent response in parliament in a debate.

 

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DWP medical guideline for DLA decision makers

British News

 

Friday 20th July 2007

 

The tenth and final version of the Department for Work and Pensions guideline on M.E./CFS is published today, 20 July 2007.

 

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JOHN'S ACTIVE LIFE HALTED BY ILLNESS

British News

 

Thursday 19th July 2007

 

A barnstaple man who has suffered from Chronic Fatigue Syndrome (CFS) for the last 19 years has been speaking out about what it's really like to live with the condition in North Devon.

 

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Chronic fatigue gets respect

USA News

 

Tuesday 17th July 2007

 

For decades, people suffering from chronic fatigue syndrome have struggled to convince doctors, employers, friends and even family members that they were not imagining their debilitating symptoms. Skeptics called the illness “yuppie flu” and “shirker syndrome.”

 

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APPG report – July 12 (MEA report)

British News

 

Monday 16th July 2007

 

Summary of key points to emerge from APPG meeting held in Committee Room 17 at the House of Commons on Thursday 12 July 2007 from 1.30pm - 3pm

 

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AfME News: APPG sets the agenda for next Parliamentary session

British News

 

Saturday 14th July 2007

 

The meeting of the All Party Parliamentary Group yesterday, 12 July 2007, in the House of Commons was attended by Dr Des Turner MP, who Chairs the APPG, Dr Ian Gibson MP, Secretary of the Group and leader of last year’s Inquiry into the progress of scientific research on M.E., Celia Barlow MP and John Bercow MP.

 

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The Effect of Illness Accumulation on Quality of Life

USA News

 

Friday 13th July 2007

 

It would seem obvious to most people that the more illnesses one has, the less functional they would be.

 

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MEA responds to Version 10 of the DWP medical guidance

British News

 

Thursday 12th July 2007

 

The ME Association believes that the vast majority of people with severe ME/CFS are so ill that they should be entitled to the care and mobility components of the Disability Living Allowance (DLA).

 

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Funding for chronic fatigue syndrome research should be increased

USA News

 

Thursday 12th July 2007

 

Last month, the Centers for Disease Control announced stunning new prevalence figures for chronic fatigue syndrome. Six to 10 times more adults in the United States struggle with this disease than previously believed, numbering in the millions.

 

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DWP Medical Guidance: Version 10 (May 2007)

British News

 

Wednesday 11th July 2007

 

On Monday 9 July the ME Association was sent the final version of new medical guidance on ME/CFS that has been prepared by the Department for Work and Pensions. This will shortly come into effect in relation to applications for Disability Living Allowance (DLA) and Carer’s Allowance.

 

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Progression Of Chronic Fatigue Studied Through Blood Samples

Australian News

 

Tuesday 10th July 2007

 

Researchers at the University of New South Wales (UNSW) believe that blood may hold vital insights into what is happening in the brain of patients with chronic fatigue syndrome (CFS).

 

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Genes linked to chronic fatigue syndrome

Australian News

 

Thursday 5th July 2007

 

Research conducted by the University of New South Wales has shed new light on chronic fatigue syndrome.

 

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