2006 Archives

Irelandonline:- 'Dark chocolate eases ME symptoms'

TIMESLEADER.COM:- It’s not just in their heads - Once dismissed as malingering, chronic fatigue syndrome finally getting respect

Times Online:- Too ill for school? Then to go to class, meet friends and pass exams on the internet

EDP24:- Demand for research into ME

Action for ME:- Consultation on the draft NICE guideline

Check Up, BBC Radio 4:- Presenter Barbara Myers and guest this week is Professor Leslie Findley, a neurologist with a special interest in chronic fatigue. Thursday 30th November 2006 15:00 - 15:30.

The ME Association:- DWP issue: draft 9 of proposed new medical guidance on ME/CFS for benefit purposes

The Gibson Report:- Inquiry into the status of CFS/ME and research into causes and treatment. This report is a PDF file.

United Press International:- Campaign to educate about chronic fatigue -- U.S. health officials have initiated a campaign to erase the perception people with chronic fatigue syndrome are malingerers. ATLANT, Nov. 24 (UPI)

OXFORD MAIL:- Sufferers fight funding threat

The ME Association:- Meeting of the APPG on ME: 16 November 2006

Action for ME:- Research Summit identifies need for collaboration

The MASON Foundation:- The Judith Jane Mason & Harold Stannett Williams Memorial Foundation announces its first Chronic Fatique Syndrome and Alzhiemer's disease medical and scientific grant recipients.

Salt Lake Tribune:- Please don't forget those with chronic fatigue syndrome

cbc.ca:- The U.S. Centers for Disease Control has declared chronic fatigue syndrome a legitimate disease that doctors should take seriously.

The ME Association:- ME Association writes to NICE about their notes from the 5th October ME/CFS guideline planning meeting

Leeds Today:- It's misunderstood, often misdiagnosed and there's no known cure. Once derided as 'yuppie flu', doctors are now taking Chronic Fatigue Syndrome more seriously.

The ME Association:- MEA comprehensive response to NICE guideline (draft 4)

News-Medical.Net:- The CDC along with the National Institute for Health (NIH) has announced a four million dollar research program to study the causes and possible treatments for CFS and says the disease is a very real one and early diagnosis and treatment are essential for recovery.

HealthCentral.com:- U.S. health officials on Friday launched a major campaign to increase awareness of chronic fatigue syndrome, an illness that has laboured under an intense level of controversy.

NBC6.NET:- Chronic fatigue syndrome is a debilitating illness that has been long misunderstood and misdiagnosed, and now a leading researcher from South Florida is on her way to Washington, D.C., to help launch a new awareness campaign.

NBC News:- Chronic fatigue is a real illness, gov't says the long-controversial diagnosis finally gets recognized

Action for ME:- Meeting of the All Party Parliamentary Group on M.E. 16 November 2006

CommunityDispatch.com:- NIH Announces Awards in Chronic Fatigue Syndrome Research. By U.S. National Institutes for Health

The ME Association:- Comprehensive MEA response to NICE Guideline on ME/CFS (draft 2)

The ME Association:- Comprehensive MEA response to NICE Guideline on ME/CFS (draft 1)

BBC NEWS:-  In a series on celebrities and their health, the BBC News website talks to author Shirley Conran, OBE, about her ME (myalgic encephalomyelitis).

Evening Star:- A YOUNG Suffolk scholar who was robbed of her university years by Chronic Fatigue Syndrome is today hoping that a collection of her poetry will raise enough money to buy the treatment that could change her life.

The ME Association:- This is a brief summary of some of the key points that were discussed at a National Institute for Health and Clinical Excellence (NICE) meeting held at the Royal Overseas League in London on Thursday 5 October 2006.

Action for ME:- Meeting with NICE on implementation and issues of draft guideline

The ME Association:- NICE guidelines - MEA asks for members' views.

Rocklin & Roseville Today:- The alarming rise in such auto immune disorders as Chronic Fatigue Syndrome, Fibromyalgia, MS, etc., is due in large part to environmental situations not the least of which include certain contaminants such as fluoride, heavy metals, over use of antibiotics (in our food supply), and pathogens in vaccinations.

The Ashburton Guardian:- ME 'has taught me well'

ME/CFS Society (SA):- An overview of the Canadian Consensus Document.(PDF)

The ME Association:- The National Institute for Health and Clinical Excellence (NICE) published their draft clinical practise guidelines for ME/CFS on Friday September 29.
 

Action for ME:- Initial response to draft NICE guideline on M.E.

BBC NEWS:- People with chronic fatigue syndrome should be offered talking therapy and exercise therapy, research suggests.

The ME Association:- Disabled Person's Railcard - more can claim

Connecticut Post:- CDC gives credence to diagnosis of Chronic Fatigue Syndrome.

Action for ME:- Action for M.E. and the Medical Research Council (MRC) have invited researchers from a broad range of specialisms and interests to attend a Research Summit on M.E. in November 2006.

Forbes.com:- Flexible Joints a Curious Clue to Chronic Fatigue Syndrome

ImmuneSupport.com:- Testing for Myalgic Encephalomyelitis - Summary by Jodi Bassett.

Science Direct:- These results suggest that Vis–NIR spectroscopy for sera combined with chemometrics analysis could provide a promising tool to objectively diagnose CFS.

Daily Mail:- Woman's sight damaged by drugs bought on Internet for Chronic Fatique Syndrome.

The ME Association:- Update of proposed new medical guidance on ME/CFS from the DWP

Daily Mail:- A landmark study claims that chemicals routinely used by farmers in the UK and around the world can result in neurological diseases.

WUSA9 News:- A tiny tick no bigger than a freckle, is causing some serious health problems in our area."I was told that I suffer from Chronic Fatigue Syndrome, Fibromyalgia, stress, malnutrition, but never was the Lyme disease test run."

ME Research UK:- Formally MERGE - ME Research UK has set up a shopping mall on the internet. Any goods bought through this mall gives commission for funding biochemical research.

Action for ME:- The Department of Work and Pensions is considering comments by a number of M.E. organisations, including Action for M.E.

Invest in ME:- ME As A Notifiable Illness in Schools

Action for ME:- Action for M.E. is undertaking concerted action, to address the serious concerns expressed by service users, regarding the continued funding of a number of specialist M.E. services.

Herald Sun:- Cruelty of chronic fatigue

Mail on Sunday:- My spy tape ME misery

UK Parliament:- "The Gibson Inquiry", Group on Scientific Research into
Myalgic Encephalomyelitis (ME)

GEN:- Science News Cover Story Highlights Hemispherx Biopharma in New Insights Confronting Chronic Fatigue Syndrome; Promising Experimental Medicine is Designated First Specific Drug Candidate for CFS

Daily Mail:- Trapped in bed for 14 years with chronic fatigue

The ME Association:- Secretary of State to appear before next meeting of the All-Party Parliamentary Group on ME.

ProHealth:- “Previously Undetected” Virus Implicated In Development of Chronic Fatigue Syndrome and other Conditions

Toplum Postasi:- Network ME, a firmly established registered charity providing vital services to those suffering from ME/CFS in North London and the surrounding counties has now had its information leaflets translated into different languages so they can reach out and help sufferers from different Ethnic groups in the area.

Welwyn & Hatfield Times:- Cash runs out for chronic fatigue service.

The ME Association:- Gibson Inquiry - agenda for 4th oral hearing.

ABC Victoria:- The first ever death from Chronic Fatigue Syndrome has been recorded in Britain. Will this finding change the way CFS is tackled?

The ME Association:- Gibson Inquiry – a matter of record.

New Scientist.com:- First official death from chronic fatigue syndrome. Click here for inquest summary on Invest in ME.

The ME Association:- Minutes of the all-party Parliamentary Group on M.E. held on Wednesday 26th April 2006. Published 8 June 2006.

Daily Mail:- Is this the cure for ME?

Norwich Evening News:- An independent inquiry which aims to research causes of ME and get rid of the stigma surrounding the condition is a step closer to being set up.

Telegraph:- Could a reduction in grey matter be to blame for Chronic Fatigue Syndrome? Barbara Lantin reports

BBC.Health:- What is ME Awareness Week ? ME Awareness Week is the annual campaign to highlight the problems faced by those with myalgic encephalomyelitis.

Greatreporter.com:- ME, continues to be ignored by doctors despite evidence it exists and is spreading. Here, a sufferer's family shares their story on the eve of ME day...

HarboroughToday:- A WOMAN who has battled against a debilitating syndrome which left her in a wheelchair, has launched a website to offer hope to other sufferers. The web site is www.can-u-help-me.com

Timesonline:- THREE quarters of ME sufferers have lost their jobs because of their illness, costing the nation £6.4 billion a year, according to new research. Published 8 May 2006.

Action for ME:- A public meeting of the All Party Parliamentary Group (APPG) on M.E. was held at Portcullis House, Westminster, 26 April 2006.

MEactionUK:- Gibson Inquiry – Day 1 April 18 2006 - Group Testimonies. Comments by Professor Malcolm Hooper 21 April 2006

Telegraph:- Sufferers of chronic fatigue syndrome have a genetic make-up that affects the body's ability to adapt to stress and change, says a study that suggests the condition is real. Published 21 April 2006.

Action for ME:- The National Union of Students (NUS) has recognised that M.E. is widely misunderstood as an illness and has resolved to lobby the Government about services for people with M.E.

Forbes.com:- U.S. scientists have identified certain genetic traits common to people who suffer from chronic fatigue syndrome (CFS), strongly suggesting a genetic basis for the condition.

The ME Association:- The Gibson Enquiry. The first oral hearing of the Group on Scientific Research into ME took place on Tuesday 18th April.

The CFIDS Association of America:- The Science & Research of CFS: A Special Issue of the CFIDS Chronicle. This 65-page special issue of the CFIDS Chronicle details research into the prevalence, cause, effects and treatment of CFS with input from researchers and experts worldwide. Here is a complete listing of the articles in this 65-page special issue, including links to several sample articles with references.

The ME Association:- Proposed new medical guidance from the DWP – MEA statement.

PEDIATRICS:- Is Chronic Fatigue Syndrome a Connective Tissue Disorder? A Cross-Sectional Study in Adolescents. Published 4 April 2006.

BMC Neurology:- Reduced responsiveness is an essential feature of chronic fatigue syndrome: A fMRI study

Georgetown Univ.:- Research Provides More Evidence That Chronic Fatigue Syndrome Is A Legitimate Medical Condition.

Action for ME:- Des Turner MP, chair of the All Party Parliamentary Group on ME at Westminster, has decided that the next meeting will be held in public. Click here for the list of MP's.

EDP24:- A £503,000 lottery grant will help a team of experts led by University of East Anglia researchers gain a better understanding of chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME).

The ME Association:- Update on the preparation of new medical guidance on ME/CFS from the DWP.

The ME Association:- ME/CFS and Advisory Committee on Pesticides - Commons, March 14.

MERGE:- Is chronic fatigue syndrome associated with platelet activation? Click on the link above for the full details on the MERGE website.

Medical News:- Latest Brain Science Discussed In Brain Awareness Week At Aviemore, Scotland. Leading international experts and researchers in brain chemistry, function and imaging and in disorders such as ME (myalgic encephalomyelitis or chronic fatigue syndrome),......

The ME Association:- ME services get renewed Ministerial backing Latest figures collected by the NHS show that 8,646 adults and 439 children and young adults have been seen by the ME/CFS services set up with £8.5m ring-fenced funds two years ago, MPs have been told.

BBC News:- Some cases of chronic fatigue syndrome could be due to brain "injuries" caused during the early stages of glandular fever, scientists suggest. Published 6 March 2006.

Sutton Guardian:- Dismissed by some as yuppy flu', ME affects as many as one in 200 people in the UK. Despite this there is scant medical knowledge on the condition. RICHARD LYONS reports on how attitudes are now beginning to change.

Telegraph:- A drug that acts on the body's immune system offers a potential new way to treat chronic fatigue syndrome, according to research on biological effects of the disease. Published 2 March  2006.

ABC News online:- Brain injury linked to chronic fatigue. New research into chronic fatigue syndrome suggests that it may be caused by temporary brain injuries resulting from a bout of glandular fever. Published 2 March 2006.

MERGE:- The short lecture, Energising Biomedical Research in ME/CFS, by Dr Vance Spence, Chairman of MERGE, is now available. This film discusses some issues and challenges involved in researching the illness, and gives a brief overview of some of our recent research.Click on the link above for the full details on the MERGE website.

Brain Phospholipids 2006:- This conference at Aviemore, Scotland features several CFS researchers speaking through out the conference.  Sunday 12^th March - Thursday 16^th March 2006.

TIMES Online:- Body & Soul - Inside story: chronic fatique syndrome. Published 4 February  2006.

DWP:- Welfare Reform Green Paper. The Government launched a Green Paper "A new deal for welfare: Empowering people to work" on Tuesday 24 January 2006.

TIMES Online:- Britain's leading female marathon canoeist, Anna Hemmings, 29, spent 2½ years battling chronic fatigue syndrome before making a dramatic recovery and winning both the European and World Championships last year. Published 8 January 2006

MERGE:- Oxidative stress levels are raised in chronic fatigue syndrome and are associated with clinical symptoms. Click on the link above for the full details on the MERGE website.

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